Our vision at Talk Lipoedema is that in the future, everyone who has lipoedema will be diagnosed and receiving an optimised individual care plan and accessing an appropriate range of free services. Families, friends and supporters of patients with lipoedema will feel educated and informed and able to access support where and when they choose. Lipoedema will be a household word. More about our aims and values.
Lipoedema is often misdiagnosed as Lymphedema or Obesity. Lipoedema is an easy condition to diagnose, as it can be done with visual clues and touch. Early diagnosis can save so much discomfort later in life by the patient. Find out more about lipoedema.
The RCGP’S offer an eLearning course which has been available from 2014. Find out more about this course.
Lipoedema is a chronic and progressive disorder of the adipose tissue. It’s often called painful fat syndrome, and it mainly affects women (though there are some cases of male sufferers). It is marked by the abnormal storage and distribution of subcutaneous fat. Lipoedema can occur at any age, with newer research showing that the disease generally manifests itself during puberty, pregnancy or other times of hormonal change. It is thought that genes play a role, although more research is desperately needed into this disease.
We’re a UK based organisation, active countrywide. We’re here to provide benefit to sufferers of lipoedema and their carers through participating in various projects and increasing awareness of the disease. Whether you’ve just been diagnosed or are a long time sufferer, we’re here to support you. We’re based on one simple premise – that talking about lipoedema is a good thing and will benefit sufferers worldwide.